Myotonic Dystrophy Support Group (MDSG)

Emergency Information



News Stories

On Tuesday 3 March2015 a reception took place at the Welsh Assembly Cardiff,and was hosted by Darren Millar AM.

On Friday 27th February, members of the Myotonic Dystrophy Support Group met in Gedling to share information about current research.

The International Myotonic Dystrophy Consortium (IDMC) will be holding it’s 10th Meeting this June in Paris.


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Fundraising News

Sarah Goring completed the Percy Pud 10k run to raise money for the MDSG.

David Lovelock is fundraising for the MDSG in honour of his mother, who had myotonic dystrophy. He will be doing 30 sporting events before his 30th birthday.

Fun day to help to spread awareness about Myotonic Dystrophy.


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MDSG Online Services




MDSG Conference Saturday the 19th of September 2015 in Nottingham.




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0115 987 5869


0115 987 0080

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