Welcome

The Myotonic Dystrophy Support Group is a registered charity dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy. We have a central helpline and a network of regional contacts throughout much of the UK.

MDSG Conference 2013.

The next MDSG conference will be on Saturday the 8th of June 2013 at the Alexandra House Hotel, Whittingham Drive, Wroughton, Wiltshire, Swindon England, SN4 0QJ.

HAVE YOU REGISTERED YET?

MDSG is urging everyone with a confirmed diagnosis to register with the Patient Registry, launched in May 2012. You can download an explanatory leaflet and register online. Find out more on our News & Events page.

Research

As part of our concern to improve the quality of life for those affected by Myotonic Dystrophy, we keep closely informed about all research in this field.

We publish some research results on this website or in our newsletter.

Tell us your news and events stories.

Please email us with any news or evens so that we can let other know.

Remember you can set up a Virgin Giving & Just Giving page for your event.We can all put it on our facebook page. Go to the news page for further details.  

Death of Cynthia Ford

Only 5 months after the loss of MDSG Director Ken Ford, we are sad to record the passing of his widow and fellow-Director Cynthia, who died on 14th of April 2013.