Myotonic Dystrophy Support Group (MDSG)

Emergency Information

 

 

News Stories

On Tuesday 3 March2015 a reception took place at the Welsh Assembly Cardiff,and was hosted by Darren Millar AM.

On Friday 27th February, members of the Myotonic Dystrophy Support Group met in Gedling to share information about current research.

The International Myotonic Dystrophy Consortium (IDMC) will be holding it’s 10th Meeting this June in Paris.

 

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Contact Families

 

 

Fundraising News

Marathon mum Sophie Mill runs for Myotonic Dystrophy in the 2015 London Marathon.

Sarah Goring completed the Percy Pud 10k run to raise money for the MDSG.

David Lovelock is fundraising for the MDSG in honour of his mother, who had myotonic dystrophy. He will be doing 30 sporting events before his 30th birthday.

 

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MDSG Online Services

 

 

Meetings/Events

Wakefield Meeting 8th of May 2- 4.30pm

The International Myotonic Dystrophy Consortium (IDMC) will be held from the 8th to the 12th of June 2015 in Paris.

MDSG Conference Saturday the 19th of September 2015 in Nottingham.

26th of September 1.30pm,Yardley Hastings, Northampton.

 

 

 

 

General enquiries

0115 987 5869

Helpline

0115 987 0080

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