The Myotonic Dystrophy Support Group is a registered charity dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy. We have a central helpline and a network of regional contacts throughout much of the UK.
The next MDSG conference will be on Saturday the 8th of June 2013 at the Alexandra House Hotel, Whittingham Drive, Wroughton, Wiltshire, Swindon England, SN4 0QJ.
MDSG is urging everyone with a confirmed diagnosis to register with the Patient Registry, launched in May 2012. You can download an explanatory leaflet and register online. Find out more on our News & Events page.
As part of our concern to improve the quality of life for those affected by Myotonic Dystrophy, we keep closely informed about all research in this field.
We publish some research results on this website or in our newsletter.
Please email us with any news or evens so that we can let other know.
Remember you can set up a Virgin Giving & Just Giving page for your event.We can all put it on our facebook page. Go to the news page for further details.
Only 5 months after the loss of MDSG Director Ken Ford, we are sad to record the passing of his widow and fellow-Director Cynthia, who died on 14th of April 2013.
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Please click on map to take you to the details of regional contacts,who can provide practical non-medical information.
Tell us about regional events so that we can share news through website and newsletter. Photos welcome! Send Here.
© Myotonic Dystrophy Support Group 2013
Registered Charity No. 1134499 Company No 07144171.