The Myotonic Dystrophy Support Group is a registered charity dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy. We have a central helpline and a network of regional contacts throughout much of the UK.
You can now become a member of MDSG online by filling out the online form and can pay by using a debit or credit card. It is quick and easy so do it today and support Myotonic Dystrophy.
MDSG is urging everyone with a confirmed diagnosis to register with the Patient Registry, launched in May 2012. You can download an explanatory leaflet and register online. Find out more on our News & Events page.
As part of our concern to improve the quality of life for those affected by Myotonic Dystrophy, we keep closely informed about all research in this field.
We publish some research results on this website or in our newsletter.
Please email us with any news of past or future events so that we can publicise them here.Remember: you can set up a VirginMoney Giving or Just Giving page for your fundraising event.We can all put it on our Facebook page. Go to NEWS & EVENTS page for further details.
The next MDSG conference will be on Saturday 7th June 2014 at the East Midlands Conference Centre, Nottingham. Book now and help us Celebrate 25 years of the charity and all the work and dedication that has made it a success.
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© Myotonic Dystrophy Support Group 2013
Registered Charity No. 1134499 Company No 07144171.