Myotonic Dystrophy Support Group (MDSG)

Emergency Information



News Stories

On Tuesday 3 March2015 a reception took place at the Welsh Assembly Cardiff,and was hosted by Darren Millar AM.

On Friday 27th February, members of the Myotonic Dystrophy Support Group met in Gedling to share information about current research.

The International Myotonic Dystrophy Consortium (IDMC) will be holding it’s 10th Meeting this June in Paris.


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Fundraising News

Please support Sophie on her London Marathon run for Myotonic Dystrophy Support Group on Sunday the 26th of April 2015.

Sarah Goring completed the Percy Pud 10k run to raise money for the MDSG.

David Lovelock is fundraising for the MDSG in honour of his mother, who had myotonic dystrophy. He will be doing 30 sporting events before his 30th birthday.


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MDSG Online Services




Trinity link hall,Chelmsford Meeting 24th April  2-4pm.

Wakefiled Meeting 8th of May 2- 4.30pm

The International Myotonic Dystrophy Consortium (IDMC) will be held from the 8th to the 12th of June 2015 in Paris.

MDSG Conference Saturday the 19th of September 2015 in Nottingham.

26th of September 1.30pm,Yardley Hastings, Northampton.

11th of October Meeting at Leicester General Hospital,
Education Centre at 2pm.




General enquiries

0115 987 5869


0115 987 0080

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