Helpline:
0115 987 0080



The Myotonic Dystrophy Support Group is a registered charity, founded by Margaret Bowler in 1989, run by volunteers and dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy.

We have a central Helpline and a network of regional contacts throughout the United Kingdom, as well as extensive links abroad.

We are supported by professional specialist Advisers, including in the fields of genetics, neurology, anaesthetics, research and rehabilitation.

To find out more, click on the boxes above:

• INFORMATION: Gives you the medical facts about Myotonic Dystrophy, its symptoms and effects; it includes answers to a number of frequently asked questions, and Video on demand.
  
• NEWS: Tells you about the Group’s planned or recent activities and events, and those of linked organisations.
• RESEARCH: Gives information about the latest work in the UK and abroad to understand the causes of Myotonic Dystrophy, and the efforts to find treatments to alleviate its effects.
• ABOUT US: Gives details of who we are and what we aim to do, including services we offer.
• GET INVOLVED: Suggests ways in which you could assist us in our work.

 

 

 

If you need Technical help with the website. Please contact Dafydd Williams on webmaster@myotonicdystrophysupportgroup.org or Fill in the form here