Myotonic Dystrophy Support Group (MDSG)

We are sad to announce that Peter Bowler, one of the founding members of MDSG and the reason that the support group was formed in 1985, has died at Queens Medical Centre, Nottingham on Wednesday 29th July. He was 43 years old. Details of the funeral arrangements will follow. Margaret and Peter's family are very thankful for all the messages of sympathy at this sad time.

Emergency Information



News Stories

On Tuesday 3 March2015 a reception took place at the Welsh Assembly Cardiff,and was hosted by Darren Millar AM.

On Friday 27th February, members of the Myotonic Dystrophy Support Group met in Gedling to share information about current research.

The International Myotonic Dystrophy Consortium (IDMC) will be holding it’s 10th Meeting this June in Paris.


Read more.

Contact Families



Fundraising News

Marathon mum Sophie Mill runs for Myotonic Dystrophy in the 2015 London Marathon.

Sarah Goring completed the Percy Pud 10k run to raise money for the MDSG.

David Lovelock is fundraising for the MDSG in honour of his mother, who had myotonic dystrophy. He will be doing 30 sporting events before his 30th birthday.


Read more.

MDSG Online Services




Wakefield Meeting 8th of May 2- 4.30pm

The International Myotonic Dystrophy Consortium (IDMC) will be held from the 8th to the 12th of June 2015 in Paris.

MDSG Conference Saturday the 19th of September 2015 in Nottingham.

26th of September 1.30pm,Yardley Hastings, Northampton.





General enquiries

0115 987 5869


0115 987 0080

Join us

Conference Booking

Make a Donation

Contact Families

Click to find out when your Local Meeting/Event is taking place.


© Myotonic Dystrophy Support Group 2013 | Privacy Policy | Terms & Conditions

Registered Charity No. 1134499 Company No 07144171.