Listed below are information leaflets published by MDSG


Click on the name and then click on the link below to download pdf or print

Why do I have Myotonic Dystrophy? (cartoon version)

MDSG and membership information

Facts for patients, family members and professionals

Why do we get new families with Myotonic Dystrophy?

Relatives information

Anaesthesia and Sedation for patients with Myotonic Dystrophy

Congenital Myotonic Dystrophy

Bowel problems in Myotonic Dystrophy

The Heart and Myotonic Dystrophy

Excessive Daytime Sleepiness in Myotonic Dystrophy

Basic Information for Midwives

Myotonic Dystrophy and the Eye

GP Leaflet – Tips for Diagnosing Myotonic Dystrophy

UK Myotonic_Dystrophy_Registry_Leaflet

Myotonic Dystrophy and the Brain

Swallowing Difficulties in Myotonic Dystrophy

Just Diagnosed

DM2 Leaflet

Painkillers Leaflet

Breathing Leaflet



Get involved

We welcome new members and new ideas

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What is DM?

Myotonic Dystrophy is a condition affecting 1 in 8000 adults

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MDSG can help

Offering friendship and support to all those affected

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Keep up to date with research in this field

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