Contact families

Our network of Contact Families can provide practical non-medical information, and will understand the demands of the condition on patients, families and other carers. If asked to do so, they can put people in touch with other affected families and individuals in the area. By using our search tool below you will be able to locate our network of families.

families families

Click below for information about regional meetings

Regional Meetings

Locate a family by entering details below, or by clicking on a red point on the map:

Postcode / Address:
Radius:
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Get involved

We welcome new members and new ideas

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What is DM?

Myotonic Dystrophy is a condition affecting 1 in 8000 adults

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MDSG can help

Offering friendship and support to all those affected

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Research

Keep up to date with research in this field

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