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Slide The international Myotonic Dystrophy
awareness day is on the 15th September 2021
Myotonic Dystrophy
Awareness Day
Get Involved!
News Get Involved About MDSG Regional Meetings

Myotonic Dystrophy Support Group is a registered charity, founded by Margaret Bowler in 1987, run by volunteers and dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy.

We have a central helpline and a network of regional contacts throughout the United Kingdom, as well as extensive links abroad. We are supported by professional specialist advisers, including in the fields of genetics, neurology, anaesthetics, research and rehabilitation.



New Diagnosis? – Start Here

Here at the Myotonic Dystrophy Support Group we have taken a great deal of time and effort in compiling useful information designed to inform and assist our visitors. Click the link below to view in depth information covering everything from how Myotonic Dystrophy is inherited and how it can effect your health.

Start here

Get involved

We welcome new members and new ideas

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What is DM?

Myotonic Dystrophy is a condition affecting 1 in 8000 adults

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MDSG can help

Offering friendship and support to all those affected

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Keep up to date with research in this field

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Contact Families

Our network of Contact Families can provide practical non-medical information, and will understand the demands of the condition on patients, families and other carers.

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Latest news


Professor Peter Harper

It is with great sadness…

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