Regional Meetings


A get together has been arranged by Local contact person Mrs Gillian Scott to be held on Saturday 7 December 2019 from 2pm.  It will be held at her home at 45 Hither Green Lane, Bordesley, Redditch B98 9BN   Telephone 01527 64988  Light refreshments will be provided


Get togethers have been arranged for Friday 22 November 2019 between 6.30 pm and 8.30pm  at Lanivet Village Hall  near Bodmin for all those in the Cornwall area and   PLEASE NOTE CORNWALL GET TOGETHER HAS BEEN POSTPONED UNTIL THE SPRING

at Sticklepath Village Hall (near Okehampton) on Saturday 23 November between 1.30 and 3.30 pm for all those in the Devon area.

Refreshments will be provided, Margaret and Michael, trustees of MDSG will be there to welcome you all, to what we hope will be the start of regular gatherings.

Please contact the office on 0115 987 5869 or email if you wish to join us.



We are having a another get-together in the Sussex area on Saturday 23 November 2019.

The venue is The Hastings Centre, The Ridge, Hastings TN34 2SA

Time is 1.30pm until 4.30pm

Light refreshments will be provided

Please contact Michele, local Contact Person on 01424 421013 or email her on if you wish to attend.



Penni Cotton is holding a get-together at Hawker Centre, YMCA Hawker, Lower Ham Road, Kingston KT2 5BH on Saturday 4 April 2020 2pm to 5pm.  Please telephone Penni on 07891 412461 or email for more details.  Refreshments available. There will be a speaker on orthotics.  Trustees from MDSG, Margaret and Michael will be joining them.









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Myotonic Dystrophy is a condition affecting 1 in 8000 adults

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