
Get involved
We welcome new members and new ideas
Read More
For almost fifteen years I have attended the Trustees Meetings and Annual Conferences of the Myotonic Dystrophy Support Group as minutes secretary, where hopefully, I have recorded accurately the events of those meetings.
During that time I have been privileged to learn a great deal about the condition and consequently how important it is to support the research and create awareness. I hope to be able to build on this interest in the future.
My background is as a medical secretary, a role I have pursued for many years and one from which I retired some ten years ago. My intention is to work alongside my Trustee colleagues to further the work of the Group and to assist with office duties where possible.
We welcome new members and new ideas
Read MoreMyotonic Dystrophy is a condition affecting 1 in 8000 adults
Read MoreOffering friendship and support to all those affected
Read MoreKeep up to date with research in this field
Read More