My name is Claire McAlonan and I have been a Trustee of the Myotonic Dystrophy Support Group since January 2021, having been co-opted for a few months beforehand.   I have Myotonic Dystrophy as do four other members of my close family.

I am now retired but prior to this I was an administrator in a multi academy trust and I have been able to use these administrative skills to help out in the office when needed.  I also look after the Facebook pages for the group and have recently [with help from Ami Ketley] started up a new forum page where people can ask questions and share their stories of living with Myotonic Dystrophy.

I am keen to support the group as we move forward into the future.