I have followed MDSG and admired the work with families affected by myotonic dystrophy for many years. I am motivated to be a Trustee as the challenges and effects of DM are close to my heart after my father and extended family were diagnosed with the condition. In 2014, I was diagnosed with DM1. I am learning, understanding and coming to terms with the challenges both mentally and physically, on a day to day basis.
I realised how much more awareness was needed and I am eager to put my time towards helping those where I can. I would therefore like to use my skills towards MDSG and help to steer it to greater success.
I served as secretary and head of business for a charity, namely Blackburn Youth Zone. I was responsible for the membership base, developing the income through fundraising and managing the governance department and dealing with Charity Commission.
I believe I am well suited to being a Trustee, as not only am I and members of my family affected by myotonic dystrophy, but I have significant experience of a charitable organisation.