UK DM Patient Registry

The launch of the Patient Registry marks an important stage in the battle to find therapies for the treatment of patients with Myotonic Dystrophy.

The purpose of the database is to prepare the way for possible future clinical trials, and patients with a confirmed diagnosis are urged to share in these opportunities by registering with the database. This advance has been made possible by joint funding from MDSG and the Muscular Dystrophy Campaign.

Full details, including how you can register are available on the leaflet.

To download a copy of the leaflet click here.

If you would like to register please click here.