Ruth Harrison

‘My younger brother, Paul, joined Myotonic Dystrophy Support Group many years ago, having been diagnosed with the condition at the age of 19.   Onset, looking back, had been much earlier in his life, but recognition and subsequent diagnosis in the 1970s took a very long time.

Having witnessed the slow but relentless progression of my brother’s condition, which necessitated the increasing involvement of various support services over the years, as a Trustee of MDSG myself, I will be as supportive as possible to other families in a similar position.    At the same time, I will work with my fellow Trustees to increase awareness of this still little recognised and sometimes misdiagnosed neuromuscular condition.’

 

 

 

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What is DM?

Myotonic Dystrophy is a condition affecting 1 in 8000 adults

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MDSG can help

Offering friendship and support to all those affected

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Research

Keep up to date with research in this field

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