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SHONA SHARES HER STORY.
MDSG member Shona Davison (pictured with her son Dexter) was diagnosed with DM when she was aged 28. Following marriage to Steve, they looked for ways to have children without risking passing on the defective gene, and learnt about a technique called Pre-implantation Genetic Diagnosis (PGD). Three years later Dexter was born, and Shona is now hoping to provide him with a brother or sister.
Shona is anxious to share her experiences for the benefit of other would-be parents in similar situations.
You can see her story on the Muscular Dystrophy Campaign's website www.muscular-dystrophy.org/about_muscular_dystrophy our_quest_for_a_baby
and also on that charity's lifestyle page at community.muscular-dystrophy.org/viewtopic.
Shona has also started a blog about her experiences apgdblog.blogspot.com/
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Latest News & Events
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Anne Bodo of Sedgefield spent an enjoyable morning in North Tees Hospital in October being examined by a group of third year medical students read more... - Shona Shares Her Story.
I have Myotonic Dystrophy so my husband and I have chosen to do PGD in order to have a baby without passing on the condition. read more... - Government Publishes Green Paper
9th March 2011 : Government publishes Green Paper on Special Educational Needs. read more... - A First for DM.
Evidence of how knowledge and awareness of DM is becoming consolidated amongst professionals working in the field. read more... - Fish and Chips and Robots....
on 28th February 2011 - Rare Diseases Day - Margaret Bowler had ,as usual ,managed to get 46 people in some sort of order to sit down together for a Fish and Chip lunch. read more... - STEM CELLS GIVE INSIGHT INTO MYOTONIC DYSTROPHY
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The 2011 Conference saw brisk sales of MDSG's new Recipe Book. Obtain a copy from the Office price £7 including postage. Thanks to Linda Perry and her contributors! read more... - 'Chasing Gold'
'Chasing Gold' read more... - 'ENCOURAGING' NEW RESEARCH FOR MYOTONIC DYSTROPHY
Researchers at the University of Valencia in Spain recently identified a new way to block the genetic change that causes myotonic dystrophy Type 1 read more... - HALF + FIVE TENTHS = FULL MARATHON FAMILY EFFORT
On Sunday 11th September 2011, Dr Jeremy Rhodes, his wife Dr Helen Brownlee, their children ran in the Robin Hood Nottingham Marathon. read more... - MARGARET JOINS THE LEGIONS...
Margaret sets out to walk five miles along the Hadrian's Wall... read more... - Dutch Government Money for Myotonic Dystrophy Research...
read more... - BRIDGE COMES UP TRUMPS
MDSG Directors John and Sue Kelly and their friends ran An Evening of Bridge in Damerham Village. read more... - MDSG GRANT HELPS NATIONAL REGISTRY
MDSG has provided a grant of £7,500... read more... - CONGRATULATIONS TO THE DAVISONS
THE magic of the season is sparkling a little brighter for the Davison family – as they celebrate their best Christmas ever. read more... - INTERNATIONAL CONFERENCE ‘BEST IDMC TO DATE’
The 8th biennial meeting of scientists and clinicians of the International Myotonic Dystrophy Consortium,held in Florida in December 2011 was felt by many to be the best IDMC so far. read more... - Backing Myotonic Dystrophy Conference
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On 25th February Linzi will be doing a sponsored tandem skydive to raise funds and awareness for MDSG. read more... - MDSG Conference 2012
Newcastle Marriott Hotel in 2012 Here we come!!! read more...
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