Mr Michael Walker
I first came into contact with the Myotonic Dystrophy Support Group 20 years ago when one of my twin boys, Nathan, was diagnosed at birth with Congenital Myotonic Dystrophy, and my wife Sharon was also found to have the faulty gene, with adult onset. Since then I have helped the Support Group with the printing of the leaflets and newsletters, as I own a small printing company.
For many years I have been travelling up from Olney to assist in the Nottingham office one day a week. I help with administration, financial matters, assisting the Editor with the Newsletter, by being on the Conference sub-committee and helping out on stands at various exhibitions to increase awareness.