Margaret Bowler

In 1985 my husband and youngest son were diagnosed with Myotonic Dystrophy. My desire was to find another family with the condition. Eventually this led to the formation of the Myotonic Dystrophy Support Group. 25 years later the caring organisation for families that I started has become a Registered Charity and has 1800 families on the mailing list. I give support with the helpline, the office and the literature. I travel in the UK and abroad to tell others about how Myotonic Dystrophy affects families. I have received several awards for the work I have done. I will continue to do all I can to make the condition known to agencies and medical professionals


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What is DM?

Myotonic Dystrophy is a condition affecting 1 in 8000 adults

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MDSG can help

Offering friendship and support to all those affected

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Research

Keep up to date with research in this field

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