Helpline:
0115 987 0080



Useful Website Links.

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Freedom Insurance

 

 

Freedom Insurance specialises in providing travel insurance solutions to those living with pre-existing medical conditions. The Freedom travel insurance policy covers most pre-existing medical conditions.

Please note when buying your travel insurance and quoting 'MDSG' as a  reference we can apply 10% Discount on basic premium.

 

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Disability Holidays

 

 

Disability holidays and accessible accommodation for disabled people, find wheelchair holidays, mobility equipment hire and disability travel advice.

 

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Muscular Dystrophy Campaign

 

We lead the fight against muscle disease.

Our work has four main focuses:

• we fund world-class research to find effective treatments and cures
• we provide free practical and emotional support
• we campaign to raise awareness and bring about change
• we award grants towards the cost of specialist equipment, such as powered wheelchairs

We rely almost entirely on voluntary donations and legacies to fund our work. Dedicated children and adults, companies, trusts and foundations help us to raise money to fund our vital work.

 

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The Genetic Interest Group

 

 

We aim to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them.

Supporting:

We seek to raise awareness of genetic conditions and improve the quality of services and information available to patients and families.

Campaigning:

We actively campaign on issues of policy and practice to influence governments, policy makers, industry and care providers such as the National Health Service.

Uniting:

We provide a united voice for all those affected by genetic conditions, enabling us to work together towards a common goal of making life better for patients and families at risk.

 

 

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National Voices

 

 

Formed in 2008, National Voices is a coalition of national health and social care organisations, coming together to ensure a stronger voice for all those who come into contact with the NHS and care services, and the voluntary organisations that help them.  Our independence of Government, and our wide representation, rooted in service user experiences, gives us the authority we need to influence decision makers.

We believe in people shaping health and social care services. We work to ensure that patients’ and carers’ voices are heard and that they influence decision makers in England.  We strive for a world in which people are  partners in their care: with more choice, control and autonomy in the way they receive services.  This results in better quality care, higher satisfaction with services and better value for money.

 

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Contact a Family

 

 

Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability.

Contact a Family became a registered charity in 1979 and we have over 30 years of experience of working with families with disabled children.

Our vision

Contact a Family's vision is that all families with disabled children are empowered to live the lives they choose to live, and achieve their full potential, for themselves, for the communities they live in and for society.

Contact a Family's mission and purpose is to remove the barriers imposed by society which prevent families with disabled children achieving their full potential, and to empower these families to live the lives they want to lead.

Our work

Last year, Contact a Family helped over 300,000 families with disabled children.

 

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Wales Neuromuscular Network

 

Creating links to benefit research and care of patients with muscle disease and other neuromuscular conditions throughout Wales.

 

 

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  Scottish Muscle Network

 

 

Welcome to the website of the Scottish Muscle Network, a national managed clinical network for people with neuromuscular disorders. The SMN will be using this website to communicate with its clinical and non-clinical members.

 

 

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  Disabled Living Centres

 

 

Assist UK leads a UK wide network of locally-situated Disabled Living Centres. Each centre includes a permanent exhibition of products and equipment that provide people with opportunities to see and try products and equipment and get information and advice from professional staff about what might suit them best. There are over 325 advisors throughout the network who respond to an average ¼ million enquiries made each year. Disabled Living Centres also provide a valuable source of information relating to access, design and equipment for daily living. This can be especially useful to carers, older people and healthcare workers, students and manufacturers.

 

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Myotonic Dystrophy Foundation (USA)

 

 

The Myotonic Dystrophy Foundation (MDF) is a patient advocacy group dedicated to leading and mobilizing resources toward effective management, treatment, and a cure for myotonic dystrophy, a common form of muscular dystrophy. This inherited disorder can appear at any age and can manifest itself differently in each individual. It affects not only muscle groups but also many other body systems such as the heart, lungs, brain and GI tract, among others. With guidance from our advisors, who together have devoted more than ninety years to the research and treatment of myotonic dystrophy, the MDF offers information to help navigate the disease process.

 

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TREAT-NMD.

 

TREAT-NMD is a network for the neuromuscular field that is creating the infrastructure to ensure that the most promising new therapies reach patients as quickly as possible. Since its launch in January 2007 the network's focus has been on the development of tools that industry, clinicians and scientists need to bring novel therapeutic approaches through preclinical development and into the clinic, and on establishing best-practice care for neuromuscular patients worldwide.

 

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CARERSUK.

 

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MDSG IS Not Responsible for The Content of External Websites.