Helpline:
0115 987 0080



Get Involved

To achieve our aim of improving the quality of life for families and individuals affected by Myotonic Dystrophy, you can help in various ways.

Become a member

For a nominal annual subscription of £10 per family, you can show your willingness to share in the Group’s concerns. You will receive a regular Newsletter and information about the latest activities, as well as discounts on attendance at the Group’s events and products. Download Membership Form (PDF)

Donate

You can give money to our charity, either for its general purposes or, if you wish, to help in our sponsorship of medical research. Facility for donations through Just Giving.

You can now donate by text message. Text MDSG02(space) + Amount to 70070

 

 

Offer Practical Help

• By becoming (with appropriate training and support) a regional contact family;
• By participating in regional events as organised from time to time;
• By assisting at the Annual Conference (held in April or May each year).

Raise Funds

Our supporters have found many ways to raise money for MDSG from sponsored runs/walks/cycling/swims etc, to selling items and donating the profits to the charity. New ideas welcome! Whatever you choose to do, please tell us about it, and send us a report of how your effort went preferably with a photograph that could be published here and in the Newsletter.