Check below for details of the latest events.

BBC Interview

Margaret is to be interviewed by Graham Torrington of the BBC this coming Thursday 1 August.  It will last about 20 minutes, be recorded, to transmit on 8 BBC stations approximately two hours later.

The questions would be sent in advance.

Rust to Rome

Stuart Hay from Inverness is raising money on behalf of his niece, Mia, who has Congenital Myotonic Dystrophy.  Stuart is driving 4000 miles to Rome, raising awareness and money.  Here is a picture of him celebrating arriving in Rome.  Congratulations, well done.

Bus Advertising

To try something different, MDSG are advertising on the back of buses in the Birmingham area.

This advertising will take place from 22 July until 19 August, to coincide with the start of the Ashes.

Please look out for them, let us know if you spot one.

The areas covered are:

Acocks Green, Bearwood, Blossomfield, Bournville, Bradford Street, Buckland End, Camp Hill, Castle Vale, Chelmsley Wood, Cotteridge, Cranmore, Damsonwood, Digbeth, Dudley Road, Edgbaston Cricket Ground, Elmdon Heath, Erdington, Five Ways, Fordbridge, Fox Hollies, Garretts Green, Gospel Oak, Hall Green, Handsworth Wood, Harborne, Haslucks Green, Hobs Moat, Kings Heath, Kingshurst, Kitts Green, Lode Heath, Lode Lane, Lyndon, Marston Green, Minworth, Monkspath, Moseley, Olton Station, Perry Barr, Pierce Avenue, Robin Hood Island, Rotton Park, Sarehole Mill, Selly Oak, Sharmans Cross, Sheldon, Shirley, Solihull, Sparkbrook, Sparkhill, Springfield, Stechford, Stirchley, Stockland Green, The Baldwin, Tile Cross, Tyburn, Tyseley, Wake Green, Walmley, Ward End, Widney Manor Station, Winson Green, Witton, Yardley

Gedling Village Gala

Myotonic Dystrophy Support Group will be having a stall at the Gedling Village Gala.

Gedling NG4

Saturday July 6th  12 pm – 4.30pm.

 No cars allowed on site after until 4,30 pm.

 Spread the news.

Sponsored Walk

St Cyprian’s Church, Nottingham are arranging a sponsored walk on Saturday 27 July 2019 in aid of Myotonic Dystrophy Support Group and St. Cyprians Church Funds.

The walk starts at Vicar Water Country Park, near Mansfield at 10am with the aim to finish at 4pm.  A total of 11.5 miles, stopping at Edwinstowe Leisure Centre for lunch.  There is a short walk option.  Further details from the office.

Margaret Bowler is doing the sponsored walk but may only do the 7 miles. !! Anyone wish to Sponsor Margaret ??  the funds are to be divided between the church of St. Cyprian’s and MDSG. If you wish to, please ring the office on 0115 987 5869.   Thanks.












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What is DM?

Myotonic Dystrophy is a condition affecting 1 in 8000 adults

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