Regional Meetings


Get togethers have been arranged for Friday 22 November 2019 between 6.30 pm and 8.30pm  at Lanivet Village Hall  near Bodmin for all those in the Cornwall area and

at Sticklepath Village Hall (near Okehampton) on Saturday 23 November between 1.30 and 3.30 pm for all those in the Devon area.

Refreshments will be provided, Margaret and Michael, trustees of MDSG will be there to welcome you all, to what we hope will be the start of regular gatherings.

Please contact the office on 0115 987 5869 or email if you wish to join us.


We are having a another get-together in the Sussex area on Saturday 23 November 2019.

The venue is The Hastings Centre, The Ridge, Hastings TN34 2SA

Time is 1.30pm until 4.30pm

Light refreshments will be provided

Please contact Michele, local Contact Person on 01424 421013 or email her on if you wish to attend.



Robin Hood Marathon

The Robin Hood Marathon is taking place on Sunday 29 September 2019.

Researcher Dr Jeremy Rhodes and Neurologist Dr Saam Sedehizadeh are both running the half marathon on behalf of Myotonic Dystrophy Support Group.

The local Rainbow Group are also taking part, but slightly shorter route of one and half miles.  they will all be increasing awareness by wearing a MDSG t-shirt.

If any one wishes to sponsor them, please contact the MDSG office on 0115 987 5869.












Get involved

We welcome new members and new ideas

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What is DM?

Myotonic Dystrophy is a condition affecting 1 in 8000 adults

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MDSG can help

Offering friendship and support to all those affected

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Keep up to date with research in this field

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