North Wales

We are delighted to announce our next Coffee & Share morning on Friday 25th October,

 

that allows anyone affected by a rare disease to meet new friends and share information.

We would be extremely grateful if you could please share the attached with your members and ask that they register at

 

www.sbdcoffeeandshare2.eventbrite.co.uk

 

 

Robin Hood Marathon

The Robin Hood Marathon is taking place on Sunday 29 September 2019.

Researcher Dr Jeremy Rhodes and Neurologist Dr Saam Sedehizadeh are both running the half marathon on behalf of Myotonic Dystrophy Support Group.

The local Rainbow Group are also taking part, but slightly shorter route of one and half miles.  they will all be increasing awareness by wearing a MDSG t-shirt.

If any one wishes to sponsor them, please contact the MDSG office on 0115 987 5869.

 

 

 

 

 

 

 

 

 

 

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Get involved

We welcome new members and new ideas

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What is DM?

Myotonic Dystrophy is a condition affecting 1 in 8000 adults

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MDSG can help

Offering friendship and support to all those affected

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Research

Keep up to date with research in this field

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